I Have An Unusual Skin Condition. After 10 Years, I’m Done Hiding It.

I was 19 years old when I noticed a large lump forming in the centre of my chest. My teenage face had always been scattered with pimples, and on my shoulders I had what was referred to at the time as “bacne.” But this felt ― and looked ― different.

At first I thought it was one of those under-the-skin pimples that had led to a diagnosis of cystic acne and prescription of Lymecycline when I was 15, but the red, raised lump on my chest was much firmer and didn’t have a “head.”

The lumps gradually spread across my shoulders and neck, hardening like small red stones on my body. It took me years to admit something was wrong. Instead, I avoided the mirror when I undressed so that I didn’t have to notice the growing number of large, protruding bumps. It wasn’t until they started to become irritated and itchy that I finally visited my doctor, who referred me to a dermatologist immediately.

At the dermatology clinic, the doctor examined me with the kind of squint that suggested my skin was a medical mystery she might enjoy unraveling. “You have a form of keloid scarring that develops from acne called keloid acne vulgaris,” she announced. It sounded to me like a rare disease that people in the 1600s would have been shunned for.

My mind was stuck on one thing: How do I get rid of them? Dr. Haddon explained there wasn’t a “cure,” but steroid injections could help shrink the scars. A few weeks later, however, I received a call from Dr Haddon: “We’re running a dermatology case study open day for unusual cases. It might be a good opportunity for you to get advice from multiple specialists. Would you be interested?”

That’s how I found myself standing in a hospital room, stripped down to a vest top, while a group of dermatologists — clipboards in hand — filed in. Instead of my name, there was a sheet of paper stuck to the outside of the door with “Case Study 6” on it.

One by one, the doctors walked up to peer at my scars and make notes. Occasionally, one would reach out and prod my shoulder like I was some kind of interactive display at a museum. My skin wasn’t just a problem, it was a spectacle. One doctor asked how long the bumps had been there, but for the most part the room was silent other than the sounds of note-taking and shuffling of shoes on the squeaky hospital floor. Nobody asked how I felt about any of this.

The dermatologists moved on to the next patient — No. 7, presumably ― and I walked out feeling more alien in my skin than ever.

Although I began the steroid injections, my scars didn’t seem to fade much. They were sore, and they itched a lot, especially at night. I would wake up to red scratches over my keloids, which made them look even more inflamed.

The author at 25 years old, months after her first full year of steroid injections.

Photo Courtesy Of Emily Tisshaw

The author at 25 years old, months after her first full year of steroid injections.

My keloid scars aren’t anything like the regular acne scars I have on my face. Those I can easily hide with a high-coverage foundation and a touch of concealer. These are large lumps that only sleeves and turtlenecks can cover. So that’s what I wore for the next 10 years.

In my 20s, I became an expert in covering up. Winters suited me. In summer, when everyone else was in backless tops, their shoulders golden and glowing, I layered T-shirts under my dresses. Everyone around would be in strappy tops and slip dresses while I was stuck sweating through the armpits of my T-shirts.

The worst thing was seeing friends casually throw their hair up into messy buns, their smooth backs catching the sunlight while I was feeling like an outcast in my layers. I told myself I was making a fashion choice, not deploying a shame-based survival tactic.

I would “warn” partners about my scars before undressing. No one ever outwardly expressed any discomfort with my skin ― I seemed to be alone in that feeling. I even once had a girlfriend who told me she thought my scars were “cool.”

The author in a rare crop top she found that covered her shoulders.

Photo Courtesy Of Emily Tisshaw

The author in a rare crop top she found that covered her shoulders.

Every six weeks, I went back to Dr. Haddon for my steroid injections. It was a routine I despised. The process was painful, the results were minimal, and every visit reminded me that I was permanently stuck in this cycle of trying to “fix” myself. At one appointment, I asked, “How long do I need to keep getting these?” She hesitated before saying, “As long as you feel you need them.” Something about that answer sat differently with me.

Years passed and I continued on in my normal routine of black turtleneck winters and shirt-under-dress summers, until I started sea swimming. I had worn a bathing suit occasionally over the past decade, on holidays abroad and family outings to indoor pools, but I always felt uncomfortable, and it was never something I would’ve chosen to do on my own. But now I was willingly getting into a bikini, because I had realised that I needed to get sober.

In recovery, the ice-cold British ocean became my replacement for the highs I once desperately chased. The shock of the water jolted me awake in a way nothing else could, numbing every thought except the one telling me to keep breathing.

For the first time in years, I stood on a beach, scars exposed, and walked into the sea without thinking about who might be looking. It was terrifying. And then, it wasn’t.

It felt like with every swim, I got more comfortable. The water didn’t care what I looked like. The sea wasn’t judging me.

I spent almost every morning for two years splashing in the cold ocean. I stayed away from drugs. I found a community of other women who liked to sea swim. They called themselves The Blue Tits. Their bodies were all different sizes, some had stretch marks and some were covered in beautiful coloured tattoos. I wasn’t judging their bodies like I judged my own. And after a decade of shame, I could feel something shifting. I was tired of hiding. I realised I didn’t owe anyone “perfect” skin. If I could stand on a beach as the rain fell, and the icy water pelted my skin, I knew I could wear a damn dress without the extra layer.

The truth was, I was exhausted. Exhausted from the constant anxiety over whether someone might notice my scars, or question why I always covered my shoulders. Exhausted from missing out on clothes I loved. Exhausted from feeling like my body was something to be hidden.

The author, always pairing her dresses with tees (age 28).

Photo Courtesy Of Emily Tisshaw

The author, always pairing her dresses with tees (age 28).

After years of sharp needles that burnt like a hot rod on my skin, Dr. Haddon agreed that further steroid injections weren’t necessary, and also that the skin could be tattooed on after a few months had passed — something I had wanted to do for a while. I visited an artist who had prior experience covering scars with tattoos. “I once tattooed a guy who was run over by a car!” he told me.

I asked him to do “something big,” and he covered my right shoulder with a large green snake that twisted down my arm intertwined with orange peonies. Snakes are supposed to symbolise new life: the shedding of skin, releasing the weight of the past. But I wasn’t letting go of my old self, I was embracing her for the first time. After years of running, it felt like I had finally come home.

At 30, the author is embracing her skin and showing off her tattoos.

Photo Courtesy Of Emily TIsshaw

At 30, the author is embracing her skin and showing off her tattoos.

I wish I could say that I am now cured of all insecurity, but the truth is, self-acceptance isn’t an overnight transformation. I still have days where I wish my skin told a different story. But I’ve learned to love who I am, scars and all. Today, I’ve swapped the turtlenecks for tank tops. I let the sun touch my shoulders. I let myself be seen.

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The Shame Of Acne Is Real — These People (Even Derms) Reveal How They Get Through It

I’ve struggled with acne since high school and sometimes had to skip school because I felt self-conscious, judged and afraid that people would whisper behind my back.

As a teen, I went to a dermatologist who put me on a course of treatments that was ineffective and, at times, painful. As my spots only grew redder, I felt insecure and ugly because of my acne, and I felt that no one understood me. Acne took a toll on my mental health. It made me feel I wasn’t worthy.

I’ve since grown in my confidence, but I know others are going through what I used to go through — and they should know they’re not alone. Acne affects over 50 million people in the U.S. every year, with 85% of those between the ages of 12 and 24.

Various studies have shown that skin conditions — like vitiligo, acne and psoriasis — can be debilitating both physically and mentally, often increasing anxiety and depression. Another study noted that people in their late teens with acne expressed “more depressive symptoms, lower self-attitude, more feelings of uselessness, fewer feelings of pride, lower self-worth, and lower body satisfaction than those without acne.”

There’s a myriad of acne products on the market, often targeting our insecurities. The size of the acne medication market in 2022 was at $9.9 billion, while Statista estimates it will reach $17.5 billion by 2032.

But sometimes just getting rid of the spots is a temporary fix. Self-acceptance, which doesn’t come easily, can be a more effective tool.

HuffPost spoke to people who struggled with acne and acceptance to learn the different ways their skin condition affected them, and how they got through it.

“My biggest advice to others is to seek help as early as possible.”

“I felt very insecure about my skin and I used to hate taking photos. It didn’t stop me from enjoying school or extracurricular activities, but it did make me feel much more self-conscious and negatively affected my self-esteem.

“Interestingly I didn’t feel judged by others, but I felt judged by myself. I wanted clear skin like most of my peers and I tried many different OTC products to ‘treat’ it, only to make it worse. I specifically remember going to a dermatologist for acne. It felt somewhat frivolous and fluffy, like I should be worried about things that actually ‘mattered’ and not acne. However, I remember going to a dermatologist and having a dedicated conversation about my acne and all the available treatments. He acknowledged my acne, validated my concerns, and actually came up with a very precise treatment plan. I remember feeling justified and reassured. It sounds silly, but I felt heard and it made an impact.

“There are so many effective treatments for acne, and they work incredibly well for the most part. The only treatment that really worked for me was Accutane, and I needed to take it twice. And I still have acne flares occasionally, but it’s much more manageable. My biggest advice to others is to seek help as early as possible. It’s much easier to manage earlier on and you can avoid deep acne scars that are very difficult to treat, so go see a board-certified dermatologist if it’s been bothering you. You don’t have to live with acne if you don’t want to.” — Dr. David Kim, board-certified dermatologist at IDRISS Dermatology in New York City

“I know I am not alone in this. These are the same sentiments I hear being echoed by my patients in-clinic, on a daily basis.”

As a teenager, my skin problems caused a world of pain. I was about 12 years old when my acne started. Sadly it developed around the same time as a bereavement, which resulted in my personal circumstances changing. In the space of a few short weeks, I was suddenly confronted with bereavement, a new school in an unfamiliar place, and trying to make friends, all whilst having dreadful acne. I was painfully shy and it was hard. I didn’t want people to look at me. All I could see in the mirror were my spots. My eyes would not catch the normal skin between them. They disgusted me and I was certain that anyone who looked at me would feel the same. Unsurprisingly, I didn’t make many friends.

“As an adult with acne, spots continue to evoke shame, embarrassment and feelings of inadequacy. It also generates anger: ‘I should have grown out of this by now!’ In meetings, you wonder if others are taking you seriously when inside you feel like a spotty teenager. Or, if your skin is bad enough, you cancel the meetings altogether for fear of being looked at or, worse still, judged. I know I am not alone in this. These are the same sentiments I hear being echoed by my patients in-clinic, on a daily basis. Acne can have profound effects on self-esteem and confidence.

“It was this personal firsthand experience of acne and how it can affect one’s mental health that led me to specialise in the treatment of acne. I know what it’s like to be in my patient’s shoes and I’m passionate about treating acne before it scars, which is much harder to treat.” — Dr. Anjali Mahto, consultant dermatologist at Self London

“My struggle has made me understand that it’s only human of me and how my skin looks doesn’t define me as a person.”

“I remember I started getting acne very early, as soon as I turned 13. It wasn’t severe in the beginning, but within a year, my face was full of painful cystic acne all over it, and suddenly that was the only thing people noticed about me wherever I’d go. From name-calling in my own house to visiting different dermatologists and ‘experts’ for wild advice, it was simply traumatic.

“The most difficult part was dealing with unsolicited opinions from people who weren’t even aware of the root cause but were always ready with tips that I never asked for. Even visiting dermatologists wasn’t very helpful, as most of them would put me on hardcore treatments, which would only make it worse. I remember I slowly started isolating myself and started making excuses for being home. I remember breaking down in front of my parents on multiple occasions just so that I could skip school on my worst days.

“After fighting severe cystic acne for almost two years, I started doing my own research just to understand my skin better. … Slowly, the condition improved. Almost 10 years down the line, I’m a content creator talking about beauty. While I still get a little conscious if someone talks about my skin (even good comments) and getting frequent breakouts as acne in most cases is chronic, my struggle has made me understand that it’s only human of me and how my skin looks doesn’t define me as a person.” — Yashwant Singh, content creator, @yashwantsngh

“Don’t let acne control your life.”

While my acne didn’t keep me from doing daily activities as a teen, it made me feel self-conscious. I was constantly worrying about what others were thinking of me. I remember I would always compare myself to others, whether they were friends or other people my age, basically asking why they weren’t struggling with this in the same way I was. So, in a way, I think I was judging myself. My confidence was impacted in a way I wasn’t expecting. I simply didn’t want to bring attention to myself but rather wanted to blend in. I know I wanted to try anything and everything to get rid of my acne because it started to become a defining feature for me, which I absolutely hated.

“The way I overcame these feelings was by reminding myself that this wasn’t the end of the world. I had to remember that I wasn’t the only one struggling with acne, especially as a teenager. Also having support was very important.

“For anyone struggling with acne, I know how difficult it can be to in the mirror and think that there’s no way it can get better, but it can. I’m now 28, and aside from the occasional blemish, I no longer struggle with acne. Surround yourself with a good support system and continue to do things that bring you joy. Don’t let acne control your life.” — David Triana, public relations consultant in Orlando, Flοrida

“A reminder: Not everything you see online is a reality at all.”

“I felt majorly insecure. I was young, and in the early years of middle school, I was consistently late making sure my makeup was right. As I grew up, I became more and more limited, never leaving the house without makeup and never letting anyone see my bare skin.

“I felt judged in so many ways, I felt like people thought I was dirty or just didn’t take care of myself. People would stare and make remarks about my skin and I felt really excluded. I felt like people just avoided me where they could because of my skin, and it was so debilitating.

“Overcoming these feelings came after I started taking pictures of my skin and posting about it. Finding a community that was open and welcoming and seeing other people who looked like me on my socials was a big help — it made it feel more normal, less different and more included. Realising acne is so normal and widely experienced really helped shift my perspective of it being a bad thing.

“And a reminder: Not everything you see online is a reality at all. I feel my generation has so much pressure to look a certain way 24/7, which isn’t possible. It’s OK to have skin problems, and it’s OK to just be YOU in whatever capacity that looks like!” — Abigail Collins, content creator, @abis_acne

“These unsolicited comments sometimes get to me.”

“I was so insecure when I first started developing cystic hormonal acne. It’s been something that subconsciously has been holding me back from enjoying events, going out and creating content as much as I wanted to, especially since I’m in the skin care niche on social media. Someone is constantly asking, ‘Why isn’t your skin clear when you use so many products?’ These unsolicited comments sometimes get to me. I feel judged and embarrassed for the condition of my skin.

“But I’m slowly figuring things out, including how to ignore unsolicited advice and stop questioning the condition of my skin and whether my acne will ever improve. Instead, I’m focusing on being present and being more mindful instead of having negative thoughts, and also stepping away from the mirror and friendships that bring me down. All these things have helped change my perspective.” — Abby Rose Maureen, content creator, @abbyrosemaureen

“I feel like my struggle with acne shaped who I am today.”

“I struggled with acne on my face and back throughout high school and in college. It’s been quite a journey, to say the least. At first, it took a toll on my self-esteem. I felt like people were constantly staring at my skin instead of seeing me for who I am. It made me feel judged and self-conscious in social situations, and even simple tasks like changing my shirt during gym class or swimming with friends became stressful. I would make sure my back was against a wall while changing my shirt to ensure no one could see my back. I was also the only one to wear a swim shirt when swimming with friends to hide my back acne.

“Overcoming these feelings wasn’t easy. I started by understanding that acne is an issue many people struggle with. I spoke to dermatologists about medical treatments, and my skin slowly improved. Beyond medical treatments, I found that self-acceptance was crucial. I realised that my worth shouldn’t be defined by the state of my skin. I began to surround myself with only supportive friends and family who didn’t judge me based on my acne which was out of my control. Today, I still get some acne breakouts, but I no longer let it affect my self-esteem.

“Through my journey, I learned the importance of perseverance and self-acceptance. I feel like my struggle with acne shaped who I am today. I never judge people by their appearance, because I know what it feels like. I enjoy sharing my acne story to help others know they’re not alone and that they will get through it just like I did!” — Vin Cirisano, content creator, @sirisano

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Try TikTok’s Viral Pillowcase If Your Skin, Hair And Sleep Routine Need TLC

We hope you love the products we recommend! All of them were independently selected by our editors. Just so you know, HuffPost UK may collect a share of sales or other compensation from the links on this page if you decide to shop from them. Oh, and FYI — prices are accurate and items in stock as of time of publication.

There are three areas many of us strive to perfect when it comes to health and beauty: our skin, hair and sleep. Often the secret to all round good health is a restful snooze, but there are a number of factors that can disrupt your slumber, and have a knock on effect on your physical and mental health.

But Silvi has become a bit of an internet sensation to combat all of the above, in the form of its anti-acne silk pillowcase.

Silk pillowcases have seen a surge in populariy in recent years, thanks to celeb advocates such as Queer Eye’s Jonathan Van Ness, but Silvi has gone one step further with a triple threat in the bedding and beauty game: a pillowcase that aims to prevent hair damage, achieve blemish-free skin, and act as a sleep aid.

Maybe it’s understandable that this pillowcase has gone viral on TikTok, racking up more than 20 million views after a video testing the product proved no nasties grow from, or on, this design, in over a week. Genius, right?

The science behind Silvi’s anti-acne silk pillowcases is that they are treated with silver ions, clinically proven to eliminate up to 99.7% bacteria that contribute to breakouts, within a week.

Not only is the gentle and lightweight fabric antibacterial, it’s hypoallergenic too, and free from any chemicals, making it a good bet if you’ve got sensitive skin, suffer from allergies, or are prone to breakouts – as well as shoppers on the lookout for anti-ageing solutions.

And then there’s the hair benefits. The mulberry silk fabric is soft to the touch, which is ideal for those wanting to prevent hair breakage when tossing and turning through the night. Plus, the gentle fabric means a comfortable surface to lay your head on, which inevitably encourages a better night’s sleep.

Silvi’s pillowcase is also temperature regulating, meaning no more night sweats, or sleepless slumbers leaving you tired and groggy come the morning. In fact, the brand says the fabric is “4.5 times more breathable and cooling than cotton”, making it popular with pre and perimenopausal women, too.

The Silvi silk pillowcase in white

ROSS CAMPBELL

The Silvi silk pillowcase in white

The Anti-Acne Silk Pillowcase comes in two sizes (standard and king size), as well as two colours (white and charcoal grey), to match your bedroom style. It also features a zip fastening so there’s no fear of your pillow slipping out.

Silvi’s pillowcase has been ethically certified cruelty free as it’s not tested on animals. And while the innovative design is machine washable – on a delicate setting with a neutral pH detergent – the silver treatment keeps it fresher for longer, so the pillowcase only needs washing every 10 to 14 days. Fewer washes means this purchase is more eco friendly, too. Every little helps.

Each pillowcase retails for £49, but fans say it’s an investment work making, considering the benefits to your hair, skin, sleep, and washing come laundry day. Buy for yourself, a friend, relative or loved one, and know that if you aren’t quite satisfied with your purchase, Silvi offers shoppers a 100-night guarantee, which means unsatisfied customers are eligible for a full refund.

But, with 100,000 pillowcases sold to happy customers in the first year alone, we don’t expect you’ll be using it any time soon. Sweet dreams!

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