While we may think that, at this point, we know all there is to know about HIV and what causes it after decades of research, recent data has revealed that there is still a long way to go, especially for heterosexual people.
Newfoundland Diagnostics have recently conducted a study using a sample of 2,504 people, into public awareness and perception of HIV ahead of HIV Testing Week this week. Alarmingly, their research found that many people aren’t aware that anybody can get HIV and have never been tested.
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According to the researchers, over one million straight people in the UK believe that they are immune to HIV. This is exceptionally alarming, given that UK Government figures show that almost half of HIV cases are heterosexual people.
73% of straight Brits have never tested for HIV
The study also found that over a fifth (21%) of heterosexual Brits believe that they are unlikely to contract HIV, leading them to not get tested. Additionally, one million Brits believe that they are ‘immune’ to the condition.
Other reasons for heterosexual people not testing for HIV include never having unprotected sex (18%), not having access to an HIV test (4%) and not being bothered to test for HIV (3%).
Overall, this research exposes a sore lack of education within the UK around HIV and how it is contracted and manifests. Newfoundland Diagnostics notes that this ironically echoes the infamous tombstone ads of the 80s which said: “don’t die of ignorance.”
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Frederick Manduca, co-founder of Newfoundland Diagnostics, said: “Whilst testing does seem to be increasing in the long-term, these findings reveal there remains a substantial amount of ignorance towards testing and its importance amongst heterosexual people.”
Who can get HIV and how is it transmitted?
Despite much of the focus surrounding HIV being on gay, bisexual, and men who have sex with men testing for HIV, far more people could contract the disease. Anybody who has unprotected sex, exchanges bodily fluids or shares needles should regularly test for HIV. Anybody can get infected with it, regardless of sexuality, race, gender, sex, or age.
HIV is found in the body fluids of someone living with HIV. This includes semen, vaginal, and anal fluids, blood, and breast milk. In the UK, according to Newfoundland Diagnostics, the most common way of getting it is through anal or vaginal sex without a condom. It cannot be transmitted through sweat, urine, or saliva.
How do I test for HIV?
All HIV tests will check your blood for any blood-borne diseases and are available as part of a regular STI check up. You can visit a GUM clinic or sexual health practice for a test, or you can test at home with a self-test such as Newfoundland Diagnostics’ HIV test.
People are being warned not to rock too hard around the Christmas tree this festive season, as doctors have shared that they often see a significant increase in penile injuries during this time of year – namely fractures.
It’s not overly common, but if a penis is violently twisted or bent when erect (usually as a result of certain sex positions), the blood vessels can burst and can result in something known as a penile fracture.
According to the medical experts, those suffering from the injury will also experience a rapid loss of erection (somewhat unsurprisingly), swelling and bruising.
The team at the German university investigated whether the incidence of penile fractures increased during Christmas using German hospital data for 3,421 people (!) who sustained such injuries between 2005 and 2021.
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And sure enough, they discovered that the rate of penile fractures increased during the festive period, adding: “If every day was like Christmas, 43% more penile fractures would have occurred in Germany from 2005 onwards.”
The study also found penile fractures “occur most likely during sex in unconventional scenarios” – mainly when sex is being had in an “unusual location” or as part of an affair.
And it’s not just Christmas either – their findings also uncovered the fact that the risk of penile fracture increased during weekends and over the summer.
“Based on our analyses, penile fractures occur in periods when couples are enjoying moments of relaxation such as Christmas, weekends, and summer,” they wrote.
“Even though we cannot, of course, recommend against having sex during these periods, our findings ring the alarm bell (and not the jingle bells).”
Of the estimated 1.2 million people with HIV in the United States, 13% are unaware they have it. This is despite ongoing scientific advancements enabling people with HIV to live long, healthy lives, and a vast increase in frank and candid conversations from people in the public eye, like Billy Porter and Jonathan Van Ness, to dispel the stigma surrounding the virus.
What gives?
“I still think there is a lot of stigma surrounding HIV and prevention, and I also think there’s still a distrust from certain communities of the medical establishment, lack of education and comfort with providers,” said Dr. Antonio E. Urbina, medical director at the Mount Sinai Institute for Advanced Medicine and a professor of medicine at the Icahn School of Medicine at Mount Sinai in New York City.
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“We have made strides in terms of decreasing the number of new infections, but we still need to demystify the tools we have to prevent it by universally adopting a more sex-positive attitude,” Urbina told HuffPost
Feeling comfortable with and empowered by your medical provider to speak openly about your status, ask questions and seek treatment are crucial tools in the fight to eradicate HIV and treat those living with it. But there are plenty of other things infectious disease doctors recommend that people do in order to keep themselves safe.
Know your status.
The most obvious-sounding one is also one of the most important. It’s not only for the benefit of your sexual partners and for the betterment of your health but also to ensure you’re getting the correct and most effective treatment possible.
“When a person is aware of their status, they can engage in informed conversations with health care providers to explore personalized prevention strategies,” Dr. Taimur Khan, associate medical research director of the Fenway Institute in Boston, told HuffPost.
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“Regular testing facilitates early detection, which can lead to early treatment, reducing the risk of HIV transmission and contributing to better health outcomes. It also opens the door to other preventive measures, like PrEP, which can be tailored to individual needs and circumstances.”
Inquire about new treatment options.
PrEP, or pre-exposure prophylaxis, is already a widely known method of protection and prevention. When taken in pill form as prescribed, PrEP reduces the risk of getting HIV from sex by 99%.
It also helps to maintain the U=U, or undetectable equals untransmittable, status. When your viral load is undetectable, it’s also untransmittable. When someone has HIV and is taking antiretroviral therapy (ART) to maintain their undetectable status, they cannot spread the virus. Since PrEP assists in preventing someone from contracting HIV even if they are exposed to it, it also helps to protect the wider community.
But not everyone feels like taking a pill every day. For those people, it might be worth inquiring about other options.
“We already have approved a long-acting bimonthly injectable called Apretude,” Khan said. “That might be able to option the window for capturing the most vulnerable populations or most impacted. It’s widely available and FDA-approved, most insurances will cover it. It just hasn’t really scaled up significantly because it’s still new, and I also think it takes a bit of infrastructure at a site or clinic to have a flow and process for getting it approved and actually doing the injections.”
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Practice safe sex and injection.
Every doctor we spoke to stressed the effectiveness of consistently wearing condoms when engaging in anal, vaginal or oral sex, and for those who inject drugs, participating in needle exchanges or ensuring clean needles are used. For more information about syringe services programs, click here.
Prioritise being in a safe space.
It’s just as important to feel empowered to discuss your sexual health with a partner as it is with your health care provider.
“There should be no shame or judgment surrounding sex. This is one of the reasons transmission continues to occur,” said Robin Hardwicke, a professor of obstetrics and gynaecology at UTHealth Houston who specialises in infectious diseases. “Sex is a natural part of human life; an expectation. Be free to have sex, but be responsible enough to protect yourself and your partner.”
“Find a provider or clinic where you feel comfortable talking about these issues,” Urbina added. “If you start to talk about this and you get shut down or they’re not responsive to your needs, you should go somewhere else until you really feel comfortable. If you feel you have to hide or not disclose something so important, it’s not a fit.”
Treat HIV as part of your overall health.
Finally, it’s important for both medical professionals and their patients to remember that they would be better served looking at HIV through the lens of overall health and not just sexual health, Khan told HuffPost.
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“The stigma that has long been associated with HIV is being challenged by emphasising a shift from discussing ‘risky’ behaviour to promoting sexual practices that are safe, consensual and enjoyable,” he said. “By addressing HIV as one aspect of a broader sexual health conversation that includes other [sexually transmitted infections], vaccinations, mental health and substance use, the focus is placed on comprehensive care and well-being. This inclusive approach helps to dismantle the blame and shame often associated with HIV and repositions it as a manageable health condition.”
When it comes to lowering your risk of getting infected with HIV, there is one immensely valuable yet grossly underused medication that doctors recommend.
The drug is known as PrEP, or pre-exposure prophylaxis,and is a medication that reduces the risk of someone getting HIV, said Dr. Shivanjali Shankaran, an infectious disease physician who specializes in HIV at RUSH University Medical Group in Chicago.
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PrEP is an important HIV infection prevention tool that many folks either don’t know about or don’t think they’re eligible for. It’s estimated that only “about 30% of the people who should be on PrEP are on PrEP and of them in the U.S., only 7% of PrEP users are women,” Shankaran said.
“The different studies had varying levels of protection, but most of those were related to how well someone adhered to taking the pills,” Shankaran explained. “So if you took the pills most of the time, if not all of the time, it’s very, very effective — obviously, if you don’t take it, it’s not going to be effective.”
There are currently three options for PrEP in the U.S.; two of the treatments are pills and one is an injectable. Cisgender women are eligible for two of the three treatments, according to Shankaran: Truvada, a pill treatment, and Apretude, which is the injectable medication.
“The CDC currently recommends that if you’re a cis woman, you take the medication, the Truvada, for example, if it is a pill, you take it every day, and about after about 21 days or so you’re fully protected,” Shankaran said.
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For Apretude, the injectable medication, the time it takes for someone to be fully protected is unknown, according to the CDC. This is because the medication has been available for a shorter time, Shankaran said.
“The duration is shorter for men, also [men] can do sort of on-demand PrEP, where you take it if you’re going to have sex,” Shankaran explained. However, taking the medication “on demand” is not currently recommended for cis women.
Additionally, cisgender women cannot take Descovy, the third PrEP medication, which is also administered in pill form. “Because, unfortunately, studies were not done in cis women, and so there was not enough data in the use of Descovy … which is why it’s not approved for that use,” Shankaran said.
PrEP is just one part of a full strategy for people to stay HIV-free.
“The reason I say it’s a strategy because I think the medication, whether it be a pill, or injectable, is sort of just part of it — so, it’s either a pill a day that people can take, or an injectable medication every two months,” said Dr. Oni Blackstock, the founder and executive director of Health Justice, an organisation that works with health care groups to reduce health inequities and centre anti-racism.
But, beyond the pill or injectable, there are additional levels of care someone receives when they start PrEP.
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“They’re going to be seeing a provider every few months, they’re going to be tested for sexually transmitted infections that can co-occur with HIV, they’ll be checked for how they’re tolerating the medication, they’ll be counselled on any sort of sexual or drug use behaviours that may be associated with HIV,” Blackstock said.
“So, I just think of it as sort of a bundle of care to help people who are HIV-negative stay HIV-negative,” she added.
The marketing of PrEP, along with misinformation, has created the inaccurate idea that cisgender women can’t take the medication.
Through no fault of their own, many cisgender women do not know that PrEP is a medication they can use to reduce their risk of contracting HIV.
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“Because PrEP has been historically heavily marketed to men who have sex with men … it really gave the impression that PrEP was not something that … cisgender women could take, and unfortunately, this is sort of reinforced by many health care providers.” Blackstock said, “I’ve heard stories of women saying, ‘Well, my doctor said this is something only gay men take or that I can’t take it if I’m pregnant or if I’m breastfeeding or if I’m trying to get pregnant.’”
(For the record, oral PrEP is safe for use in people who are pregnant, breastfeeding and trying to get pregnant.)
“So, there’s a lot of misinformation also from health care providers as well,” Blackstock noted.
The misinformation combined with the lack of marketing toward cisgender women has led to a low uptake of PrEP among this group, Blackstock said. Black women, who account for half of new HIV infections in women, are on PrEP even less.
When asked why this is the case, Blackstock said “it’s multifactorial.”
“Some of that has to do with women, particularly Black women thinking that they may not be at risk, so sort of low perceived risk of HIV, but it’s also because a lot of women may not be aware of PrEP because it’s something that health care providers aren’t talking to them about or offering.”
Additionally, it may have to do with health insurance coverage. “We know that the South is the epicentre of the HIV epidemic [and] there are many states in the South that haven’t expanded Medicaid, so for various reasons, Black women may not have access to PrEP,” Blackstock added.
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Shankaran noted that for uninsured or underinsured people, there are still options.
“You can get access to medications, either via the CDC, they have something called a Ready Set PrEP program, as well as the manufacturer, they have programs where they can help you get medications, even if you are uninsured,” Shankaran said. (Keep in mind that everyone won’t qualify for these programs.)
PrEP is a powerful tool that puts women in control of their health.
You can take PrEP for as long as you are at risk of contracting HIV, Shankaran said, and you can stop taking it when you are no longer at risk. You can also pick it up again if necessary.
Additionally, you don’t have to go to an HIV doctor of infectious disease doctor for the medication. “Your primary care physician can prescribe it, some places family medicine [can prescribe], adolescent clinics [and] some places GYN clinics will prescribe it,” Shankaran said.
What’s more, you’re given peace of mind when you properly take PrEP.
“The really wonderful thing about PrEP is that it’s user-controlled, a woman can take it with or without her partner’s awareness and knowledge — some women may be in a situation where it may not be safe to share with their partner that they’re taking PrEP, but it allows a woman to protect herself,” Blackstock noted.
And just to underscore this point: PrEP is for people of all gender identities and sexual orientations and is an immensely valuable way to stay HIV-free.
An STI which is virtually unknown to the public is likely to be found in Black, Asian and other minority women more frequently, according to new research.
While more common than other sexually transmitted infections such as gonorrhoea, the virus Trichomonas vaginalis (TV) is largely not known about to large swathes of people.
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But new research shows that it is more common among ethnic minority women and can appear with common symptoms or asymptomatically.
Without treatment, the condition can have serious consequences, increasing the likelihood of HIV and pregnancy complications, which is why it’s important we get clued up on it.
The research, presented by Preventx at the British Association for Sexual Health and HIV annual conference, found that TV is also more common among heterosexual people. They studied 8,676 women from six English local authority areas who had completed remote STI tests.
While women of colour were most likely to be affected, Black women were particularly found to be at risk.
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In the study, they found that 5.2% of women from Black, Caribbean and African heritage who had vaginal discharge – a common symptom of the infection – ended up testing positive for TV.
For all other women, the risk of having and displaying signs of the condition were 3.5%, with white women facing lower chances, at 3.4%.
Even in Black women who did not show any symptoms, the chances of TV remained higher among them, with a positivity rate more than twice as high as for white women. For Black women, this figure was eight times more likely, whereas for white women it was twice.
But it might not be genetic differences that predispose more women of colour to the condition than white women – it could be to do with levels of social deprivation.
For the first time, scientists also considered the relationship with poverty and rates of TV.
They found that the highest levels of TV were found in disadvantaged areas, with 5.9% of women in the most deprived neighbourhoods (in which women of colour are more likely to reside) testing positive for TV. In affluent areas, this number is at 1.4%.
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Dr John White, medical director at Preventx and consultant physician in sexual health commented on the study, saying: “Trichomoniasis is a relatively unknown STI among the general population, but it can cause significant pain and discomfort. I know from the patients in my care that it can also cause a lot of emotional distress for the person infected too.
“Women, in particular, can remain infected for years – and their distressing symptoms are often misdiagnosed or dismissed. If untreated, TV can also increase the chance of acquiring HIV in at-risk communities, as well as cause complications in pregnancy.”
Scientists hope more research and testing is done to understand and treat the condition.
Dr White added: “Our new data shows worryingly high positivity rates, with certain communities more affected than others. As TV can easily be diagnosed with remote NAAT tests, it is vital that more high-quality TV testing is carried out across the UK, helping us to understand more about the distribution of this infection.
“This will allow us to address the consequences of undiagnosed TV and reduce transmission.”
What is TV and what are the symptoms?
TV can affect both men and women. According to the NHS, symptoms of trichomoniasis usually develop within a month of infection. However, up to half of all people will not develop any symptoms (though they can still pass the infection on to others).
The symptoms of trichomoniasis are similar to those of many other STIs so it can sometimes be difficult to diagnose.
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